Lucky Fin Project


Celebrating the wonderfully made one "Lucky Fin" at a time.

If you've seen the movie "Finding Nemo" then you know all about Nemo's "lucky fin" and how being made a little differently doesn't stop him from accomplishing anything he sets out to do. I began making bracelets in July of 2010 in celebration of my daughter Ryan as well as all the other children in the world with Symbrachydactyly or a limb difference. Over six-three hundred bracelets have been sent all over the world and the Lucky Fin love continues to spread.

I believe everybody is different. Some people's differences are on the outside and easier to see than the differences others have on the inside. But EVERYBODY has got something and God doesn't give challenges to those who can't handle them. And in what ever your challenge, is a blessing worth celebrating.

A child being born with a limb difference is not tragic. It's extremely important to show our children how capable & wonderfully made they are. If we treat them as flawed or limited that is who they will believe themselves to be- and that would be the tragedy.

We are a 501(c)(3) nonprofit organization that exists to raise awareness and celebrate children and individuals born with symbrachydactyly or other limb differences. 

What We Do:
  • Creates a support network for parents across the U.S. and around the world.
  • Links parents to medical information and resources.
  • Provides education on limb differences.

 

  
The Lucky Fin Project has published awareness brochures for
distribution to hospital Labor & Delivery wards, birthing centers, Obstetricians, Pediatricians, Orthopedists, and parents.

*If you are interested in obtaining awareness brochures please contact mollystapes@luckyfinproject.org


The mission of the Lucky Fin Project is to celebrateeducatesupport and unite. Lucky Fins ROCK!

              
Lucky Fin Project founder Molly Stapelman and daughter Ryan. 

What is Symbrachydactyly?

Taking the word literally, "sym" means joined (like "syn"), "brachy" means short and "dactyly" means finger.  So, the word means "Short joined fingers."
Symbrachydactyly (sim-brak″e-dak´tĭ-le) occurs during normal embryonic development. When a baby’s hands begin to form in utero, they are shaped like mittens or paddles. Then the fingers divide. In babies with symbrachydactyly, the fingers (and sometimes the hand and arm) don’t fully form during this time. This may happen because the area doesn’t get enough blood flow or because of some other problem with the tissue. It’s not caused by anything the mother did or did not do while she was pregnant. 
This hand disorder characterized by abnormally short fingers that are sometimes webbed or conjoined. Most children with symbrachydactyly have the "short finger" type in which the thumb is essentially normal but the remaining fingers are short, stiff and may be webbed. In other cases, only the thumb or the thumb and little finger are present. In more severe cases, all fingers are missing and small nubbins of skin and soft-tissue (little stumps) are located where the fingers would have developed. Research continues into further understanding why this happens.
 This limb difference occurs in every 30,000 to 40,000 births.
It’s not passed down in families (inherited). If you have a child with symbrachydactyly, you are not at any greater risk of having another child with the condition.
There are 7 different classifications of symbrachydactyly. Nubbins, one of the classic findings in symbrachydactyly, can be present with any of these except the short finger type. 

1.short finger
2.cleft type (thumb and small finger present)
3.peromelic (nubbins)
4.monodactyly (only the thumb present)
5.wrist bones present (but nothing more distal)
6.wrist bones absent (ie, arm ends at the end of the forearm)
7.transforearm (amputation at mid forearm level)


Be sure to "LIKE" the Lucky Fin Project on Facebook  & follow the
Lucky Fin Project on Twitter.



mollystapes@luckyfinproject.org

symbrachydactyly limb difference amniotic band syndrome lucky fin
Website Builder